We spoke about this SCT as being like a hurdle race – forget the hurdles, this dose of GVHD has been more like a high jump – Olympic standards! But, this athlete is rising to the challenge.
Each day sees Paul a little stronger and although he still looks really tender around the eyes and nose, he’s not getting such a fright when he looks in the mirror! His mouth is still pretty troublesome, but with a good dose of pain killers before hand he is attempting some food. The protein drinks have become Paul’s staple diet – we these he is doing exactly as he has been told (at least six a day). This too shall pass.
The nurses and dermatology team are all commenting on what a great improvement they can see and his day spa treatments have now been reduced to two a day.
Paul’s life still revolves around intravenous drugs, pills, potions and lotions. The nursing staff continue to give him so much attention and be so supportive – these girls really do deserve a medal.
Paul wants everyone out there in blog land to know that your support is much appreciated and they really do give him a laugh at times.
One day at a time……..