Somewhere along the line I have dropped a day and today is Day +50, so Paul is half way to that ‘magic’ +100 days.
The last four days have seen us out and about town taking a spin in the wheelchair. They have also seen Paul’s energy levels at varying degrees. But today has been a better day. For those of you who have seen the movie The Intouchables he has mentioned that he might trade me in for the black dude in the movie cause he makes life so much fun. We do look like a right couple though hairing around town with Paul in his weird get up (I will sneak a photo opportunity at some stage). Being out in the glorious sunshine certainly does gives Paul’s spirits a lift though 🙂
The improvements to Paul’s skin continues, in particular his mouth is getting much better and this makes eating food a little easier. Everything still tastes shocking and he cannot tolerate anything with the slightest hint of good flavour! Although his eyes are still quite bloodshot we can now see that He actually has whites to his eyes.
It seems though that instead of medications getting less the list seems to grow longer. The main medication for GVHD, a steroid called methyl prednisone, can play havoc with your blood sugar levels and cause irratic heart beat – well you guessed it Paul has been dished up both, so this means more drugs to counteract the other. He asked for a medications list this week and he has a total of 29 different types of drugs or lotions.
Another positive – he has been battling a couple of infections in the last couple of weeks, well they seem to be getting on top of those also.
We are hoping that the next 50 days, as we head toward day +100 just have to get better than its been. Keep up those positive vibes and prayers everyone, we are sure they are doing the trick – but Paul still has a steep climb to get out himself out of this deep hole he has been in.