Today, the 14th July is (would have been) a very significant day in the journey of ‘middys marrow’.
Today marks exactly one year since Paul went for the blood tests which turned out to be a very life changing happening and one that caused us both, and a lot of other people heartbreak.
Today would also have marked day 100 for Paul which in terms of stem cell transplants is a very significant milestone and when a bone marrow biopsy would have been performed to determine the percentage donor cells to remaining diseased cells. More importantly though is that from day one hundred they start to consider the weaning down of some of the toxic drugs used to suppress the patients immune system.
Today – its unbelievable, also marks National MDS day. So, can any bloggers who happen to read this spare a thought and help raise awareness for this little known but very destructive disease.
I still struggle to believe that this is it and my darling Paul is with us no longer. It all just seems so unbelievable.
At time we have used songs to express emotions on this site. Well one that constantly goes through my head at the moment is an old one by Ringo Star.
“All I’ve got is a photograph and it reminds me of the places we used tho go.
All I’ve got is a photograph and I realise your not coming back any more.
Now your expecting me to live without you and that’s just something that I’m not looking forward to”